Thursday, April 22, 2010
Day Care
Thankfully, my mother teaches Pre-K in this center. Actually, that's the reason he's going there, because my mother will be in the building, and she knows his teacher and the type of environment he will be in all day. I personally prefer home/family day care for young children, but in this case the center is the better choice. This center has a kitchen, so as part of the cost the children are fed two meals and two snacks a day. Obviously, my son can not eat all of the meals they prepare, but he can eat most of the fruit, and things like potatoes and juice. Initially, I was going to supply ALL of his food (including snacks and drinks). But the woman that runs the kitchen is really willing to work with me, and has begun the process of looking up ingredients so we know what is safe for my son. And, it would save me some money not to have to provide everything, especially considering that day care is quite an expense.
So now I have a decision to make. Do I pack all of his food or just some of it? Should I let him eat food from the center, keeping in mind that the likelihood for cross-contamination or accidental exposure goes up, even if he is only eating "safe" foods? Or should I err on the side of caution, and not take the risk? Does it make a difference that my mother is in the building (not the room)? Or that my younger sister babysits for the woman that runs the kitchen, so she has a slightly personally relationship with family? Do those things affect how cautious and careful she will be when making his food?
I know that I might sound a little paranoid. But this is my child. I know adults that think milk allergy=lactose intolerant. People have told me that food allergies aren't "real". (You think so? Tell that to families of the 150 people in the US that die of food allergic reactions every year.) I've had people earnestly offer yogurt or cheese, knowing that he has a milk allergy. Or cookies and cake. Oftentimes, they just don't know...or think things through. And so I have my reservations about trusting other people to feed my son. But, I also recognize that I am in a position to educate, which I am willing to do. Having my mother in the building and knowing the cook might make it easier for me, safer for him and maybe I can educate more people about the realities of food allergies.
Ah, decisions, decisions.
Thursday, March 11, 2010
E-training
Anaphylaxis E-Course Link
Monday, March 08, 2010
WebMD and food allergy prevention
Robert Wood, MD, director of the division of pediatric allergy and immunology at Johns Hopkins University School of Medicine in Baltimore, tells WebMD that pregnant women should not feel guilty if they do not want to follow avoidance measures.
"I explain to my patients that exposure [to food allergens] in pregnancy seems to be a risk factor in some studies, but the results are not consistent. We don't have the answer," he says.
I think that for the mother of a child with one, or maybe even two, food allergies, taking avoidance measures would be fairly straightforward. But for someone like me that would have to avoid multiple foods it is considerably more complicated. Although I work hard to ensure that my son has adequate nutrition despite his food allergies, it would be more difficult for me to do the same for myself and a growing fetus. Not impossible, but difficult. And eliminating multiple foods has its own risks, which have to be weighed against the risks of the baby developing food allergies.
Unfortunately, past experience has shown me that the numbers might not be on my side. For example, the majority of women experience their water breaking with their first child while they are home in bed. Only a small percentage of women experience their water breaking while they are standing, because the baby's head acts as a cork. Very few women are in public when this does happen. I was walking around Wal-mart when my water broke, I was one of the few. Children who are breastfed develop food allergies at a lower rate and of those who do develop food allergies, they are less likely to have multiple food allergies. I breastfed my son well past his first birthday, and yet he is allergic to four of the big eight. He is one of the few. To be honest, I would be quite upset if I avoided all of those foods, breastfed, and my child still developed multiple food allergies. There's a lot to consider when making this decision.
Friday, March 05, 2010
Binky's Big Day
Mr. Ratuburn asked Arthur to pick a friend to help pass out the birthday cookies. "Pick me!" they all shouted. Everyone wanted to help except Binky. He knew he couldn't eat birthday treats or even help pass them out because of his food allergies.
"I want Binky to help me," said Arthur. "Binky has food allergies," said Francine. "He can't help you."
Arthur smiled. "We checked with Binky's mom, and my dad made chocolate chip cookies from Cherrybrook Kitchen that everyone can eat!"
Binky jumped up to help Arthur. "The first one is for you Binky," said Arthur. Binky took a huge bite. "WOW these are awesome?" said Binky.
The class cheered as Binky passed around the cookies. When he finished, he whispered to Arthur, "Thanks. This is the best day ever!"
This is the story that was on the back of the Cherrybrook Kitchen chocolate chip cookie mix. I hope you enjoyed it, I know we did.
Thursday, March 04, 2010
Yay for Cherrybrook Kitchen!
Drum-roll please...
They were good! The taste and sweetness were just right, they were quick and easy to make, and everyone liked them. They were a little "cakey", but I took them out a little earlier than recommended because I wanted them to be soft and chewy, which they were. Overall, these were a hit and something I would buy again.
Saturday, January 30, 2010
Travel and Food Allergies
There are a number of resources available to food allergic persons that make international travel more manageable and safe. Yes, there is going to be more work and preparation for the food allergic family. More research and perhaps luggage. But there are so many viable options for international travel.
For the newbie to international travel with food allergies, Europe is a great place to start. Good command of the English language, excellent health care (that you will not have to pay for) and an understanding of food allergies abound in many countries. I doubt that a vacation to England will be fraught with potential minefields, at least not any more than a trip to visit grandma or your buddy from college. There won't be language issues, the society is familiar with food allergies, packaged food is labeled with potential allergens, and the medical care is excellent. If the long airplane ride or the thought of being an ocean away from the US scares you, start out with Canada, then you can take comfort in the fact that you can be airlifted back to the US in no time.
Although I would not recommend a trip to a less developed country (in terms of infrastructure and medical care) for the novice traveler, especially one with a history of anaphylaxis, you would be surprised how easy it can be. The primary reason for this is that foods are generally prepared fresh daily. It is easy to eliminate potential allergens when you know what goes into everything. Go to the market. Purchase the fresh food. Cook it. Enjoy.
Of course, there are a few things that will make a trip for the food allergic family less stressful. Here are my suggestions:
1) Stay in a hotel where the rooms/suites have kitchens, or rent an apartment or guesthouse for the duration of your trip. This way you can prepare most of your meals, and you don't have to deal with the hassle of asking questions and fretting about cross-contamination at every meal. And renting an apartment of guesthouse often works out cheaper than a hotel for a family or a group of friends.
2) Get a card printed that lists your food allergies in the language of the country you will be visiting. For some examples check out SelectWisely. Be sure to give the card to waiters, restaurant managers, friends, and others that will prepare or come into contact with your food. In restaurants, insist that the card is shown to the chef. If it's feasible, learn how to say a few phrases, like "I have a life-threatening allergy to peanuts" in the language(s) of the place(s) you will be visiting. If you have multiple allergies, talior your phrase to meet your needs. I have learned how to say "My son can not eat that, he has food allergies" in many languages.
3) Do your research! Depending on your allergy, some countries will be more difficult than others for you. If you are just venturing into the world of travel with food allergies, avoid going to countries where your allergen is a diet staple. You can always go on your next trip. For example, if you are allergic to soy, China might not be your best choice for a first trip. Also, try to find out in advance if there are local restaurants and grocery stores that are food allergy friendly, or will make your life easier (i.e. Vegan if you have a dairy allergy). A little more research before you go makes for a better trip once you arrive. Find out where the local hospital is, and if it is equipped to handle a life threatening reaction. If it isn't find out how far you would have to go, or stay in a different area. The internet has a lot of resources, so look for information that is specific to your allergy and destination. Or simply type in "food allergy" and "travel" and go from there.
4) Prepare. Order a special meal or bring your own food for the journey, pack extra allergy medication, make sure your epinephrine auto-injectors and inhalers are in good working order, get doctors notes for medication and food (especially liquids) to make going through security checks and customs easier. Put a few things in your carry on and checked bags to "hold you over", just in case. Something that you enjoy eating, but does not require refrigeration or cooking. For example, I always have one or two extra containers of shelf-stable soy milk, instant oatmeal and some fruit bars for my son. If we are unable to get to the store as soon as we arrive, or something unexpected happens, like a flight delay or cancellation, he will not be hungry and I don't have the added stress of finding something safe for him to eat. We have only had to my "emergency stash" once so far, but every slightly heavier carry-on was worth that one time of being able to sit in an airport, pour milk into oatmeal, stir and feed my son, stress-free. If you are adult with food allergies, you might want to bring along a medical release form. It authorizes others to administer life saving medication in case of a severe reaction. And don't forget your medical ID.
5) Don't be embarrassed! You know how to handle your food allergies, and you are responsible for keeping yourself safe. The same things that you do at home usually apply wherever you go. Don't be afraid to talk to airline staff about special meals, snacks and accomidations. For example, if you have a severe allergy, you might want to board early so that you can wipe down your seat area without delaying the boarding process. Call the airline and hotel beforehand to find out if they can accommodate you. Talk to your travel companions, your waitstaff, and anyone else that needs to know about your allergies. If people are ignorant and rude, adjust your plans accordingly. Dealing with ignorance is better than dealing with a hospital trip.
6) After all of the trips to the pharmacy, phone calls, organizing medical information, packing, watching your bank balance diminish and triple checking your plans, RELAX. Enjoy your vacation! People with food allergies travel every day without having any reactions, and you can too.

Monday, January 04, 2010
9 days, 6 airports, 5 airplanes, 2 airlines and 1 toddler
One of the things that has truly been wonderful for us are restaurant cards. You can make your own, or print them from various websites, personally I print mine from Food Allergy Buddy. When we go to a restaurant, I give the card to the server with an explanation of the ways in which I would like to modify the chosen entree. So far, I have not encountered any problems. Most of the time either a manager or the chef comes to the table and discusses my son's allergies with me and ensures that the chosen meal is safe. This is excellent, because they are aware of "hidden" allergens that might not be apparent from the menu description, and are able to advise me of alternative options, some of which might not be on the menu.
During the holiday season, my extended family decided to have a dinner out. They chose a Tex-Mex place, and I was understandably a little concerned, as my son is allergic to all dairy. A Tex-Mex restaurant sounded like a trial by fire, but I decided not to object to their choice, while coming up with a backup plan in my mind. Much to my delight, after explaining my son's food allergies to the server and giving her the card, the chef came out and informed me that he has TWO children with food allergies and would make sure that whatever I wanted my son to eat would be prepared in a safe manner. I was ecstatic! Sure enough, his food was dairy (and other allergen) free and everyone was able to enjoy their meal.
I always have two or three cards in my wallet, just in case. They have proven invaluable to me during those times when we eat away from the safe confines of home. I've had managers comment that they love the card, as having the list of allergens written down makes their job much easier. Especially when people have multiple food allergies, it can be difficult for the manager/chef/wait staff to remember and keep track of what an individual diner can not eat. Being able to double and triple check without having to come and ask saves times and lessen the likelihood of errors and decreases frustration and anxiety for everyone. Yippee for stress-free dining!
Monday, December 21, 2009
Holidays and Food Allergies
What do most people think of when they think of the holidays? Food, of course. Thanksgiving and Christmas dinner. Holiday specific treats and deserts. Parties and family visits and office gatherings all involve food. Neighbors stop by with "holiday treats" and strangers offer small children goodies galore. But for a person with food allergies, seemingly benign thinks like desserts can be deadly. And it is not easy to modify some of the classic holiday food to an allergy friendly version.
Thankfully my little one is still quite young, and so some of the pitfalls are easily avoided. But he is getting older. He's already started to notice when his food looks different, and he doesn't like it. And as he grows, it will get harder to have only two or three things he can eat, versus the dozen or so options that everyone else is choosing from. Although I believe that it is important for him to learn how to live in a world that is full of allergens, I also think that when he is at home he should feel comfortable and free. He might not be able to eat everything in the house, but I would like him to be able to eat most things.
Tuesday, December 08, 2009
It's here!
On the reverse:
DOB
Allergic to eggs, peanuts,
dairy, shellfish, chicken
Carries Epi-Pen
It fits well, is clear and easy to read, difficult for him to remove, fully adjustable and doesn't irritate his skin. YIPEE!!
Here he is out shopping with his auntie, wearing his new Medical ID.
Of course, he kept trying to take it off. At one point, he was even using his teeth to try and pry it open! Thankfully he had long sleeves, so I just pulled them down and he was on to the next distraction. Out of site, out of mind.
Tuesday, December 01, 2009
Gearing up to travel
Although we might not plan for months to take a trip, we will give ourselves at least a week. And there is a lot to do during that week. I have packing down to a science. I have a checklist that I keep on hand, and I'm organized enough that I can pack in my mind for a few days before I physically put items in suitcases. This way when I actually pack it's pretty straightforward. We also have to make sure that passports, visas, vaccinations and exemption letters are in order and up to date. I call the airline to reserve seats and check on any relevant policies. Language refresher courses or basic phrase lessons are always on my to-do list. Additionally, if it's a long trip, then there are goodbye's to say, automatic payments to arrange, people to visit, stuff to box up and shopping to be done.
Food allergies add another layer of preparation. I also have make sure I have enough food and drinks for my son to eat on the plane and for a few days once we arrive, just in case we have any difficulty finding things for him. Drinks sometimes cause a problem and I always check the allowable liquid amounts for the duration of the trip. I triple check the epi-pens and clean and shine the medical alert bracelet. We visit the doctor and make sure that applicable letters are up to date.
And as I prepare for our next trip, I'm trying to order customized silicone allergy alert wristbands in other languages, as an added layer of protection. This is going to be our first international trip with my son post-weaning, so it is going to be a learning experience for me. No more nursing to ease the discomfort, calm him down or put him to sleep. I'm still researching and trying to figure out other ways to make traveling as simple as possible. I guess we'll just have to see how it goes, and I'll definitely share my experience.